- Down Syndrome Victoria
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Links
Categories
- Australian Government Sites
- Australian Web Sites
- Comprehensive Web Sites
- Family and Individual Pages
- International Down Syndrome Associations
- International Pages
- Interstate Down Syndrome Associations
- Medical Resources
- Online Magazines and Newsletters
- Other Interesting Down Syndrome Sites
- Other Resources for Parents
- Other Sites
Australian Government Sites ^
- Better Health Channel
- Quality health information.
- Centrelink
- Department of Education - Sofweb
- Site includes resources & information for students, parents & teachers.
- Moreland Community Portal
- Database of 1000 community groups and services in Moreland as well as more than 1000 statewide services. Includes contact details, links to email and web sites, services and activities, meeting times, opening hours, eligibility, disability access, public transport,referral and appointment requirements, and voluntary work.
- PapScreen Victoria
- Online Pap test directory is a listing of Victorian general practices and community based services that provide Pap tests to women. Service providers can be sourced by location, gender, types of practitioner(eg. nurse/GP), language and disability access.
- Victorian Government Department of Human Services
- Victorias Disability Services Commissioner
- The Commissioner has been created to work with people with a disability and disability service providers to resolve complaints.
Australian Web Sites ^
- Arts Project Australia Gallery
- Arts Project exhibit works of art by people with Down syndrome. They run classes from their Northcote, Victoria, studios.
- Association of Children with a Disability.
- A statewide parent support organisation providing information, support and advocacy to all parents and carers who have a child with a disability. 'Through The Maze' - the essential guide to benefits & services for families of children with a disability - can be downloaded from this site.
- Breastfeeding a Child with Down Syndrome by the Australian Breastfeeding Associ
- This site offers much help to new mothers of babies with Down syndrome.
- Centre for Genetics Education.
- The Centre for Genetics Education is based in Sydney, Australia. It provides and enormous amount of information on genetic issues.
- Cobram Adult Training Centre - Intellectual Disability & Quality of Life Issues
- Disability Information Victoria
- This site is designed to assist you to navigate through the maze of available services.
- Epic Early Intervention Centre
- INFO-X-CHANGE
- A non-profit organisation dedicated to providing a quality up-to-date information service to the Australian community.
- Murdoch Childrens Research Institute
Situated at the Royal Children's Hospital in Melbourne. One of the leading institutes into genetics in Australia.
- The Genetic Support Network of Victoria
- The GSNV is a newly formed group whose mission is to facilitate a network committed to promoting the interests and well-being of people affected by genetic conditions. The Network promotes education, encourages communication and support and represents the views of individuals and families. The Network aims to ensure that all people with a genetic disorder living in Victoria have appropriate and accurate information and support for their disorder that will enable them to manage the challenges to their health and well-being. The Network believes that collaboration between individuals, families, professionals and genetic services is the essential basis for achieving this goal. The Network strives to be an effective voice across Victoria, representing the views and aims of people and their families affected by a genetic condition.
Comprehensive Web Sites ^
- Recommended Sites on the Internet
- ****THIS IS THE PLACE TO START.*****\nCompiled by Dr. Len Leshin, MD, FAAP\nA massive list for the USA and around the world.
Family and Individual Pages ^
- Abell Family Homepage
- Mainly about his family plus email.
- Carmen Christi's Page
- Catherine Slater Home Page.
- A chronology of life with the Slater family. Provides good links to UK sites.
- Catherine Slater's Home Page.
- Lots of links to family life in the Slater household.
- Daemerg Family Homepage
- Daiki's Webpage
- Down Syndrome: A Parent's Perspective
- Features articles and downloads on caring for a child with Down syndrome by Australian author Fiona Place.
- Elijah M's Page
- Hughes Family Hompepage
- JD's Down Syndrome Page New Zealand
- Jewell Family Homepage
- Kaitlyn and Tonya's page
- Karen H's Home Page
- Laura Harding's Home Page
- Michael Regos' Page
- Michael Regos is a young man with Down syndrome; "An extra chromosome makes you better than average, not worse. I'm trying to live like a human being, not a person with Down Syndrome."
- Stardancer Family Page.
- The Caves Family Homepage. Lots of beaut photos and family interest.
- Woo Family Home Page
International Down Syndrome Associations ^
- Canadian Down Syndrome Society
- This site has many resources in many different areas.
- Down Syndrome Association of Greater Cincinnati USA
- Down Syndrome Association of Minnesota USA
- Down Syndrome South Africa
Information about Down syndrome and the services available in South Africa.
- Down's Syndrome Scotland
- Based in Edinburgh, this association has many interesting and helpful publications that can be viewed on their web site.
- Fundacio Catalana Sindrome de Down
- Based in Barcelona, Spain, this private non-profit organization was founded in 1984. It uses a combination of Spanish and English.
- Mile High Down Syndrome Association USA
- Riverbend Down Syndrome Parent Support Group (Illinois) USA
- Upside! (Washington) USA
International Pages ^
- 1 The Down Syndrome Search Engine
- **** Fantastic site. Try here to start. There are 411 links for you to choose from!
- Assoc. for Children with Down Syndrome USA
- Down Syndrome Community Service Club USA
- Fundacao S=EDndrome de Down (Portuguese)
- National Association for Down Syndrome USA
- National Down Syndrome Congress USA
- National Down Syndrome Society USA
- The Down Syndrome Association UK
- We are here to help people with Down syndrome
- UK Information about Down Syndrome.
- Lots of helpful information about Down syndrome in the United Kingdom.
- Your Genes, Your Health
- DOLAN DNA Learning Center, NEW YORK, have added a new unit on Down syndrome to their site. It is a free resource and uses animations and video clips to explain Down syndrome in terms od cause, diagnosis and treatment.
Interstate Down Syndrome Associations ^
- ACT Down Syndrome Association
- Down Syndrome Association of NSW
- Down Syndrome Association of Queensland
- Down Syndrome Association of Western Australia
- Down Syndrome Society of South Australia Inc.
Medical Resources ^
- Gateways Support Services
- Designed for teachers and integration aides, child care workers, health professionals, respite carers, swimming instructors, this site offers many practical suggestions that will benefit both parents and professionals.
- The Centre for Developmental Disability Health Victoria
- The Centre for Developmental Disability Health Victoria is a joint initiative between the Departments of General Practice at Monash University and the University of Melbourne. It aims to improve the quality of health care available to people with developmental disabilities throughout Victoria and to promote awareness of health care issues of adults with developmental disabilities amongst medical and other students, medical and other health professionals and service providers thropughout Victoria. The CDDHV is comprised of three main areas: Clinical servcies, Educational programs and training resources, and Research initiatives.
Online Magazines and Newsletters ^
- Disability Solutions
- A resource for Families and Others interested in Down syndrome and other related disabilities
- Down Syndrome Quarterly (a multi-disciplinary journal)
Other Interesting Down Syndrome Sites ^
- UPS & DOWNS.
- Ups & Downs is a book about families who have experienced Down syndrome. This site has been created by the editor, Catherine Courtney.
Other Resources for Parents ^
- ABA Materials - Early Learning Resources.
- They are a small company that produce CD-ROMs with color images that parents print as flash cards to teach children with Down syndrome, learning disabilities and developmental delays.\nThis product is now used by parents and special schools across the USA, UK, Europe and Australia and has proven to be enormously useful to parents in need of resources. Among others, it is used by the Autism Patnership in their USA, Canada and Australia centres.
- Australian Breastfeeding Association.
- The Australian Breastfeeding Association has much information to help new mothers of babies with Down syndrome.
- Companion Card.
- The Victorian Government has supported the Companioncard Scheme where a person needing a carer to attend a venue or outing pays for a ticket while the companion enters at no charge. More and more venues are joining the scheme and the card can also be used on many forms of public transport.
- Connects: the Mental Health & Learning Disabilities portal.
- 'Connects' is a world-wide,interactive,personalized forum for the sharing of information by people whose lives are touched by mental health problems or learning disabilites, their parents, friends, carers, educators and therapists, as well as researchers, legislators and volunteers.
- Dolls with Down syndrome features.
- There is a selection of dolls with Down syndrome features to choose from. A good teaching resource for disability awareness.
- EPIC - Education Program for Infants & Children Inc.
- EPIC was established in 1976 and is the major provider in Victoria of specialised teaching and therapy for children with intellectual disabilities, especially children with Down syndrome.\nThe main Centre is located on the Bundoora West Campus of RMIT University and is affiliated with the University Department of Psychology and Intellectual Disability Studies. The Interdisciplinary staff team includes teachers, physiotherapists, speech pathologists and psychologists. Visiting teachers support the integration of children enrolled in kindergartens and schools.\nFunding is provided by the genreous support of people sharing a committment to children with intellectual disabilities. The Governemnt provides a small grant.
- Extended Families
- Extended Families provides support and companionship for families who have a child with a disability. Extended volunteers are enthusiastic, mature-aged people committed to making a difference and are carefully matched with a family who has a child with a disability, fostering the development of a loving and caring 'grandparent' style of relationship.
- Family Fun & Special Needs Resources
- This site aims to foster an online special needs community where families & people with disabilities share stories, questions, concerns and ideas. All free.
- IDEAS - Equipment Access Services
- IDEAS - Information on Disability Equipment Access Services - is a non-profit organisation managed by a committee of people with a disability & their supporters. It provides contatc & support to resolve information Queries, referral and other services where appropriate. Contact them for info about: accessible holidays, daily living aids, leisure & sports programs, transport, communication aids, etc.
- Interchange North West
- Interchange provides a variety of respite & support programs for families who have a child with a disability.
- Interchange Victoria
- Interchange Victoria. There are 16 Interchange programs based in 26 Victorian metropolitan & rural locations. They provide a variety of respite & support programs for families who have a child with a disability.
- International Center for the Enhancement of Learning Potential.
- The official website of Professor Reuven Feuerstein, Ph.D.
- Marillac House.
- Marillac House provides accommodation and support to children and adults with intellectual disabilities throughout Melbourne's southern metropolitan region. This includes residential care in several houses as well as a wide range of outreach and other support services.
- Natural Parenting Melbourne
- This is a city-wide network of families and professionals aiming to support, educate and celebrate the diversity of 'natural choices' available to families as they journey their way through pregnancy, birth and ongoing parenthood. Holistic concepts are supported.
- Online Parent to Parent Book
- Your can download the whole book or one chapter at a time. Well set out, comprehensive and easy to read.
- SIBLINGS AUSTRALIA INC - A national organisation.
- Services for siblings of children with special needs. Kate Strohm, author of 'Siblings',was instrumental in the foundation of this site. Siblings Australia has created 4 new discussion groups - three for siblings of different ages (children, teens & adults) and one for professionals who provide family and sibling support. SibChat4Kids, TeenSibChat, SibChat and SibServices can all be accessed via the main website.
- Special Olympics Victoria
- Special Olympics is an international voluntary organisation providing year-round sports training and athletic competition in a variey of Olympic-type sports for children & adults with an intellectual disability.
- Specialminds
- A United States store dedicated solely to carrying resources for parents and teachers of children with special needs and learning differences.
- The Centre for Grief Education.
- The Centre for Grief Education is an independent, not for profit organisation which is the largest provider of grief & bereavement education in Australia. They offer many workshops of particular benefit to the disability sector.
- Your Shout - for Adolescents.
- This is a web site made by and for adolescents who have a brother or sister with a disability or chronic illness as part of the Siblings Project at the Association for Children with a Disability. Siblings are encouraged to write about their own unique experience in a range of formats, including reviewing media and services that are related to them. The web site also provides links and pathways to information and support for both recreation and issues related to disability in the family.
Other Sites ^
- Brenden James Photography
- Brenden James took a series of black and white photographs of people with Down syndrome for an exhibition held at the end of 2002. He captured images of the very young through to adults going about their lives.
- Jan's Special Needs Travel
- Jan Macdermid specialises in holidays for people with special needs to the Bendigo/Heathcote area of Victoria.
- Peter's Web and IT Services
- Providers of Web design and development
- UP SYNDROME - A film by Duane Graves.
- Up Syndrome (2000) was written, produced, directed and edited by Duane Graves while a student of University of Texas. The film is about 23 yr old Rene Moreno, his chum, who has Down syndrome. It is funny, poignant and challenging. 82 minutes. Contains some swearing. You can see a trailer of the film at the above site and download it.
219 Napier Street / Fitzroy, VIC / Australia 3063 / Ph: 03 9486 9600 / Fax: 03 9486 9601
© Down Syndrome Association of Victoria 2009
Last Updated: 15/09/2009